Advancing holistic high quality care and services for people living with rare diseases across Europe.
RareResourceNet – the European Network of Resource Centres for Rare Diseases – aims at accelerating the development and the implementation of holistic high quality care pathways for people living with a rare disease across Europe, to contribute to raise standards of care and support.
Read more about us![cropped-rareresourcenet.jpeg](http://rareresourcenet.eu/wp-content/uploads/2021/09/cropped-rareresourcenet.jpeg)
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Vision and objectives
Holistic high quality care and services available to people living with rare diseases across Europe by 2030.
LEARN MOREBoard of directors
![cropped-Screen-Shot-2021-10-05-at-14.58.50.png](http://rareresourcenet.eu/wp-content/uploads/2021/10/cropped-Screen-Shot-2021-10-05-at-14.58.50.png)
Anders Olausen, (Chair)
Ågrenska, Sweden![Screen Shot 2021-10-05 at 15.03.04](http://rareresourcenet.eu/wp-content/uploads/2021/10/Screen-Shot-2021-10-05-at-15.03.04.png)
Dorica Dan, (Vice Chair)
NoRo, Romania![Screen Shot 2021-10-05 at 15.06.52](http://rareresourcenet.eu/wp-content/uploads/2021/10/Screen-Shot-2021-10-05-at-15.06.52.png)
Lisen Julie Mohr (Secretary)
Frambu, Norway![Screen Shot 2021-10-05 at 15.09.21](http://rareresourcenet.eu/wp-content/uploads/2021/10/Screen-Shot-2021-10-05-at-15.09.21.png)