RareResourceNet is a new and exciting network for centres specialized in Rare Diseases. 

Advancing holistic high quality care and services for people living with rare diseases across Europe.

RareResourceNet – the European Network of Resource Centres for Rare Diseases – aims at accelerating the development and the implementation of holistic high quality care pathways for people living with a rare disease across Europe, to contribute to raise standards of care and support.

Read more about us

Vision and objectives

Holistic high quality care and services available to people living with rare diseases across Europe by 2030.

LEARN MORE

Board of directors

Anders Olausen, (Chair)

Ågrenska, Sweden

Dorica Dan, (Vice Chair)

NoRo, Romania

Lisen Julie Mohr (Secretary)

Frambu, Norway

Vlasta Zmazek (Treasurer)

Debra Centre