List of Members: 

Which services can join the network:

Resource centres and specialised social services aiming at providing holistic care for people with a rare disease or for other chronic complex conditions and disabilities.

Membership categories:

  • Full members;
  • Associate members;
  • Supporting members;
  • Observing members.

To receive more information on RareResourceNet and the membership criteria please contact Lisen Julie Mohr, responsible for the RareResourceNet Secretariat, at