List of Members:
- Ågrenska, Sweden
- Casa dos Marcos, Portugal;
- Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras, Spain;
- Debra Centre, Croatia;
- Eesti Agrenska Fond, Estonia;
- Frambu, Norway;
- NoRo, Romania.
Which services can join the network:
Resource centres and specialised social services aiming at providing holistic care for people with a rare disease or for other chronic complex conditions and disabilities.
- Full members;
- Associate members;
- Supporting members;
- Observing members.
To receive more information on RareResourceNet and the membership criteria please contact Lisen Julie Mohr, responsible for the RareResourceNet Secretariat, at firstname.lastname@example.org.